Last Updated on July 31, 2018 by Sarah Ahmed
The National Viral Hepatitis Roundtable (NVHR) will be hosting a hepatitis C (HCV) patient summit in early 2019. The summit, NVHR’s first national patient gathering, will bring together 100 patients recently cured of or currently living with HCV who have not had experience engaging in other advocacy programs.
By establishing a platform for 100 HCV patients to engage in dialogue, NVHR will work with participants to develop shared goals as well as address the need for greater patient engagement and leadership to ensure the delivery of high quality of care for patients diagnosed with HCV. To ensure the demographics of attendees reflect the demographics of the HCV epidemic, the patient summit will emphasize recruitment of individuals from disproportionately impacted and marginalized communities.
The summit Planning Committee is comprised of 8 members who have lived experience of HCV and are engaged in patient advocacy. These members are providing oversight and helping NVHR staff execute the summit: Chris Abert, Dan Berrner, Ronni Marks, Peter McLoyd, Gloria Searson, Robin Lord Smith, Alicia Suarez, and Louise Vincent.
We will release applications for patient participation in the summit in September 2018. To receive updates about the summit, please join our listserv by visiting www.nvhr.org/join.