Hep C Task Force Meeting Highlights | 6-27-18

June 27 (3 PM – 5 PM) American Cancer Society, Manhattan
www.hepfree.nyc #HepFreeNYC #EndHepatitis
In Attendance: See Below

Presentations

Leveraging 340B to Support Hepatitis Navigation Services at Health Centers and Hospitals
Jasmine Muniz-Cadorette, Business Operations Coordinator, Brightpoint Health – jcadorette@brightpointhealth.org
Sheila Reynoso, MPH, Director HCV Treatment Network, Montefiore Medical Center- sreynoso@montefiore.org

View presentation here and here.

Staying Safe: Intervention to Prevent HCV among Young PWID (ages 18-29)
Pedro Mateu-Gelabert, Ph. D., Principal Investigator, National Development Research Institutes, Inc. – mateu-gelabert@ndri.org

Young people (18-29 years old) using heroin or Rx opioids can enroll in this behavioral intervention study, they do not have to be a NYC resident. Free HCV and HIV testing and compensation offered.
View full presentation here.
Staying Safe Program Flyer here.

Policy and City Council Viral Hepatitis Initiative Funding Update
Reed Vreeland, Director of NYC Community Mobilization, Housing Works – r.vreeland@housingworks.org

NYC Council renewed the Viral Hepatitis Initiative funding (page 41) for FY2019.
To receive City Council funding, view application information.

Community Comments and Feedback

What are your current barriers to Hep C care and treatment:
- Misinformation, Stigma, Lack of knowledge about new meds, Having no symptoms = no urgency to get treated
- Unstable housing, Lost to follow up, Phone numbers not in service, Uninsured immigrants getting access to drugs, Alcohol and drug use, Adherence to medication, People getting treated but partners are not – causing reinfection
- Medicaid requiring a specialist for treatment, Specific training for doctors to treat HCV, Labs not using automatic reflex testing, Patients not returning for SVR testing.
Hepatitis C can be cured, see the explanation here and here. A person can always get infected again with Hep C. If you clear the virus on your own, or get treated and cured, you can get Hep C again. You are never immune! Learn more here.

Committee Updates

Communications Committee
- Recently participated in a national Twitter Chat #HepChat.
- To suggest a project or join the committee, contact Committee Chair: Shanaz Hosein – hoseinshanaz@gmail.com
HIV/HCV Treatment Access Committee – Project SUCCEED
- View update here.
- To join the committee, contact Committee Chair: MaNtsetse Kgama, MPH, Project Manager, NYC Health Department – mkgama1@health.nyc.gov
Coalition against Hepatitis in People of African Origin (CHIPO)
- Next meeting: August 10 (3-5 PM) at African Services Committee: 429 W 127th St, New York
- To RSVP or join the committee, contact Committee Chair: Farma Pene, NYC Health Dept – fpene@health.nyc.gov
Advocacy Committee
- To join the committee, contact: Sarah Ahmed – sahmed10@health.nyc.gov

Upcoming Events

African American Hep C Action Day | Hep C University July 25th (9 – 4). Salvation Army, 540 Lenox Ave ( btw 137th and 138th), New York

World Hepatitis Day | Thunderclap: Quest to #FindtheMissingMillions. July 28

National African Immigrant & Refugee HIV/AIDS & Hepatitis Awareness Day. September 9

Liver Cancer Awareness Month. October.
See more upcoming events on our Community Calendar

Funding

Call for Proposals | Hepatitis C Micro-Elimination – Gilead
- September 30, 2018 Deadline
NYSHealth Accepting Applications for Conference Scholarships
- Rolling Deadline

In Attendance:

Alecia Charles, Hepatitis C Program Coordinator, SUNY Downstate Medical Center, alecia.charles@downstate.edu
Alex Ortiz, HCV Linkage to Care Specialist, Brightpoint Health, alortiz@brightpointhealth.org
Alexis Brenes, Health Care Access Specialist, DOHMH, abrenes@health.nyc.gov
Andres Perez – Correa, Clinical Research Coordinator, Icahn School of Medicine at Mount Sinai, Andres.perez-correa@mssm.edu
Anna Mageras, Project INSPIRE Data Manager, Icahn School of Medicine at Mount Sinai, anna.mageras@mssm.edu
Anthony So, Pharmacy Student, St. Johns University, anthony.so13@stjohns.edu
Brian Hennessey, PREP Coordinator, Housingworks, b.hennessey@housingworks.org
Bruce Glazer, Account Executive , AbbVie, bruce.glazer@abbvie.com
Bruce Rector, Co-chair Drug Pricing, Value, and Affordability campaign, Doctors for America, Bruce.Rector@drsforamerica.org
Carl Tyler, HCV Peer Educator, Brightpoint Health, ctyler@brightpointhealth.org
Charu Malhotra Verma, VHP Intern, DOHMH, cverma@health.nyc.gov
Chelsea Grant, Clinical Research Coordinator, Hepatitis Outreach Network- Mount Sinai, Chelsea.grant@mssm.edu
Cherry Jones, HCV Program coordinator, Mount Sinai Health System, cherry.jones@mountsinai.org
Danielle Cornwall, Pharmacy Specialist/Hep C Coordinator, Amida Care NY, dcornwall@amidacareny.org
Dennis Robinson, Specialty Pharmacy Account Executive, Acaria health, William.robinson@acariahealth.com
Diana Diaz-Munoz, Program Coordinator (Hep C Peer/Check Hep C), DOHMH, ddiazmunoz@health.nyc.gov
Donna Gilmore, Physician Specialist, Kings County Hospital Center, donna.gilmore@nychhc.org
Elisa McBratney, Program Manager, REACH – Mount Sinai ellisa.mcbratney@mountsinai.org
Evan Wong, Pharmacy Intern, St. Johns University, evan.wong13@stjohns.edu
Farma Pene, Health Care Access Specialist, DOHMH, fpene@health.nyc.gov
Fernando Valerio, Check Hep C Patient Navigatorm Community Health Care Networks, fvalerio@chnnyc.org
Gillian Saunders, Director of Healthcare Compliance and Special Projects, Housing Works, G.Saunders@housingworks.org
Halimatou Konte, Hepatitis Coordinator, African Services Committee, halimatouk@africanservices.org
Hasani Escobar, Bedford Stuyvesant Family Health Center, hescobar@bsfhc.org
Henry Chang, Global Health Consultant, Liver Health Investment Fund, henry.amsterdam@gmail.com
Jasmine Muniz-Cadorette, 340B Program Coordinator, Brightpoint Health, jcadorette@brightpointhealth.org
Jean Ayan, Nurse Educator, Sandra Atlas Bass Center for Liver Diseases, Northwell Health jayan@northwell.edu
Joel Zive, Director of Patient Education, Lindenwood Rx Center, jzive@lindenwoodltc.com
Joy Cambe, Program Coordinator, Empire Liver Foundation, joycambe@empireliverfoundation.org
Karina Escamilla, Health Affairs Coordinator, Consulate General of Mexico in NY, kescamilla@consulmexny.mx
Liz Tang, Health Care Access Specialist, DOHMH, ltang@health.nyc.gov
Mantsetse Kgama, Project Manager, DOHMH-Viral Hepatitis, mkgama1@health.nyc.gov
Marie Bresnahan, Project Director, DOHMH-Viral Hepatitis, mbresnahan@health.nyc.gov
Medesa Garrett, HCV Coordinator, Brightpoint Health, mgarrett@brightpointhealth.org
Melanie Lawrence, Community Planner, DOHMH, mlawrence1@health.nyc.gov
Nadine Kela-Murphy, Practice Transformation Specialist, DOHMH, nkelamurphy@health.nyc.gov
Natalia Kwon, Specialty Representative, AbbVie, natalia.kwon@gmail.com
Nirah Johnson, Director of Program Implementation & Capacity Building, DOHMH, njohnso2@health.nyc.gov
Patrick Cen, Pharmacy Student, SJU, patrick.cen13@stjohns.edu
Paul Bolter, Community Outreach and Education Manager, American Liver Foundation, PBolter@liverfoundation.org
Paul Goldberg, Senior Director of Sales/340B, BioPlus Specialty Pharmacy, pgoldberg@bioplusrx.co
Pedro Mateu-Gelabert, Principal Investigator, NDRI, mateu-gelabert@ndri.org
Peter Chen, Program Coordinator, Kingsbrook Jewish Medical Center, PChen@kingsbrook.org
Rachel Redding, Program Assistant, DOHMH, rredding@health.nyc.gov
Rahel Yosief, Patient Navigator, BOOM!Health, ryosief@boomhealth.org
Ramona Almenana, Project Director, NDRI, almenana@ndri.org
Reed Vreeland, Director of NYC Community Mobilization, Housing Works, r.vreeland@housingworks.org
Rod Rollock, Pharmacy Representative, Jewel Pharmacy, rod@jewelpharmacy.com
Romy Alvarez, Patient Navigator, Montefiore Medical Center, Roalvare@montefiore.org
Ronald Forehand, Peer Educator, Montefiore, ronaldforehand6@gmail.com
Sarah Ahmed, Communications and Community Engagement Coordinator, DOHMH, sahmed10@health.nyc.gov
Sheila Reynoso, Project Coordinator, HIV/Hepatitis C, Montefiore Medical Center, sreynoso@montefiore.org
Shelby Stahl, Clinical Care Coordinator, HSS Urban Family Health Center, SStahl@henrystreet.org
Stephanie Moy, 340B Intern, Brightpoint Health, smoy@brightpointhealth.org
Steven Linick, Account Manager, Briova Rx, stevenlinick@briovarx.com
Susan Lee, Specialist Pharmacist, Northwell Health, skang@northwell.edu
Suzanne Robinson Davis, Program Manager, Bedford Stuyvesant Family Health Center, srobinsondavis@bsfhc.org
Tanya Louis, RN Northwell Health, tlouis4@northwell.edu
Tatiana Vera, Health Educator/Linkage to Care Specialist, Montefiore Medical Center, tvera@montefiore.org
Toya Robinson, HCV Theraputic Specialist, Gilead, Toya.Robinson@Gilead.com
Umaima Khatun, Program Coordinator, DOHMH, ukhatun@health.nyc.gov

Last Updated on July 24, 2023 by HepFree NYC

Tags: Hep C Task Force Committee